Content Creator. Disability Advocate. Speaker. Author.
Jess is a Mother of two girls, a content creator, disability advocate and published writer. In 2020 she gave birth to Adeline, who at birth was diagnosed with Down syndrome. What started as a traumatic and scary diagnosis has propelled her into a life of advocacy and passion for her daughter and the Down Syndrome Community. She co-founded the advocacy platform Extra Lucky Moms with Taryn Lagonigro whom she met and connected with through friendship and advocacy efforts. Their mission is to spread the joy of disability motherhood which they do through their platform, blog, social media (160k+ on tik tok!) programs, connections and apparel that sparks conversation and gives back. She currently resides in Short Hills, NJ with her 6 year old daughter Charlee, Adeline (3) and husband Matt. She hopes to inspire others facing a disability diagnosis to not fear the future but to embrace a new beautiful perspective.
Jess was born in Sweden but raised in North Carolina and started singing at the age of 5 years old. She pursued a career in music, modeling and performance and received her BFA in Music Theatre from Elon University. She spent 10 years in NYC and had some great successes which included national commercials, a beauty campaign printed in Vogue Magazine, a recording contract and even working with Timbaland and Snoop Dog. She met her husband Matt on a rooftop bar in Manhattan and they were engaged 9 months later. She decided to switch gears in her career and pivoted to the other side of the modeling industry, fashion! Jess worked as a lead stylist for a style-subscription company, moved into marketing for an international branding agency and worked for a non-profit consultancy, on the sales and marketing side before co-founding Extra Lucky Moms.
Jess was featured in Olay's Skin swap challenge this summer and most recently announced her partnership with Huggies and Kimberly Clark as the 2024 Brand Ambassador!